Well today we went back to The Royal Brompton.
We got there early and were the first people there, we even beat my son's consultant. It was a while before we would be called in so my son played in the waiting room. At this point I should say thanks to @bromptonsupport for the many toys that are there for the children to play with.
We were then called in to see Dr Till. She showed me the results of my son's latest heart monitor, they were all normal, which they would be as he didn't faint. So we spoke about the results of the previous heart monitor, which picked up a fast heart rate when he fainted. But she could not give me a reason why.
The plan is now to have my son seen by a proper neurologist, not a pediatric doctor with an interest, Dr Tills words, and have another EEG but this time a sleep deprived one.
So the conclusion is that this is either neurological or blood pressure related. If it is blood pressure my son can't have a tilt table test until he is 7. Which means we may not have a diagnosis before he is 7.
We also spoke about how my son would cope at full time school, which starts in September. Dr Till sent us to see the Paediatric Electrophysiology Clinical Nurse Specialist who is going to write to my son's school with a care plan for him so the school will know what to do when he faints.
Now I just have to wait for the neurologist appointment to come through. But we at least we have ruled out my condition as a cause. He still might need a loop recorder but while he might need to have a brain scan Dr Till thought it was best not to put one in.
Well that's it for now the next Brompton appointment is in 6 months time.
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