Thursday, 8 November 2012

My daughter, my carer.

As you will know from my other posts, having Vasovagal Syncope is the bane of my life.

My daughter has been looking after me ever since she could crawl! Every time I collapsed she would sit down by my side and stroke my hair, and she would not let me get up for at least twenty minutes after. If I tried to get up she would say 'mummy lay down' and push on my chest to stop me getting up. After that she would only let me sit up on the floor. It could be over half an hour before I even got on the sofa for my sleep.

She is only just four years old and has been very worried about me for most of her short life. I do think that it scared her as she would not know if I would wake up and when I did I would most likely have some kind of injury.

Meny times she has had to get me an ice pack out of the frezer for a spained arm or broken wrist. I did once brake a coffee table and now have a very nice dent in my arm, which will be there forever.

My little girl has been my rock and she even now asks if I'm going to 'boom head', one of the little names she has given my condition.

When I had the Reveal device implanted she would go get the remote when I collapsed and press the button to make it record. She loved doing this as it made her feel important. Not that she was not important before she has been that since the moment she was born :)

When I told her that she was going to start school she got very worried about what would happen while she was not with me and said she didn't want to go to school. But she did start teaching her little brother want to do if I collapsed. But when we made the dission to have the PM it was partly for her and my son so they could have a normal childhood and be able to go out and not have that worry in the back of their minds that something could happen to mummy if we go out.

I am glad now that I have my PM she dosen't have to worry anymore, and she can have a proper childhood.

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