Sons EEG

Today we had my sons EEG

Arriving early we were seen late. The specialist who did the EEG explained that he was going to measure points and mark them on my sons head.

Next the specialist put cream on these specially marked points. The cream cleaned the areas ready for the electrodes to make good contact with my son's scalp. Then 23 electrodes where glued into place with a suger paste. The electrodes that where put on his forehead had to be kept in place with tape. After this a fabric lattice cap was put on his head.

While all this was going on my son was happily watching a dvd of Thomas the Tank Engine, which was supplied by the hospital, they really know how to keep children entertained during this test.

We were then ready for the test to begin. For the first few minutes the system checks that all the electrodes were connected properly. Then the test starts. My son was first asked to close his eyes for 10 seconds then open them again. After this he just had to watch the dvd. This happened three times throughout the test, which went on for about thirty minutes.

The whole session was recorded and will be reviewed by a neurological specialist in the next couple of days. Hopefully I will have the results soon.

My poor boy part 4

Ahhhhhhhhhhhhhhhhhhhhhhhhhhh
Today on the way home from picking up my daughter. I get a phone call from The Royal Brompton asking why I had not been at an appointment for my son to have an eco cardiogram and review!!!
This is news to me. I have had no letter or phone call informing me of this appointment.

My Poor Boy Part 3

Yesterday was a very very stressful day.

We ended up in A & E yet again as son fainted 4 times :(
So lets start at the beginning...

It was just another normal morning we got ready for school and walked out the door. But on the way to school he fainted. As he didn't hurt himself we went to school. Nothing happened while he was in school. On the way home he fainted again hurting his hand, this is NOT normal for him, we have had only one on a fainting day up to this point.

We got home and had lunch, after lunch we were off out again, as I needed to get my own medication from the chemist before going on  to Little Cherubs, our church toddler group. Tuesdays are a very busy day for us. On the way to the chemists he fainted again, so now we were up to three times. I did say to him that we needed to go to the hospital, to this he was not happy at all. He wanted to go to cherubs no matter what. I was not happy that he had fainted three times I said that if he fainted again we would be going to hospital.

While at cherubs he was fine, a little more clingee than normal but all fine. We had loads of fun and eat meny pancakes, it being pancake day. Then it was time to leave an pick up his sister from school. On the way he fainted again so we needed to go to hospital.  But first to get to school to pick up my daughter. When we got there one of her friends dads said she could go home with them while I went to the hospital. To get to the hospital we went by bus, I should really have called an ambulance but I was so worried that I just thought got to get there, how do I get there, by bus, so that's what we did.

Once there we saw the nurse who took his blood pressure which he didn't like very much. She also checked his eyes as on the last faint he hit his head. Then we had to wait to see the doctor. As normal in hospital this took ages, once we did get to see the doctor and explained want had happened we had to see another doctor. So another wait but while we were waiting he had to give a urine sample. He was really not impressed with this.

After a long while we got called in to see a more senior doctor. At the same time he had to have an ECG, he hates these and keeps moving when he is supposed to stay still.
After talking to the doctor and explaining everything again, the doctor said that there is not much that they can do except try and get his appointment with The Royal Brompton brought forward. They also said that they will try to get his EEG sorted too even though it was only ordered on Monday.
He did say we could stay in but my son was having none of it, and he is better off home anyway in the doctors opinion.

So there you have it more waiting for us...